What's a lesion, you ask? Hmmm...well, the best way I can describe it is the protective coating over your nerve fiber that sends a signal, much like the plastic protective coating over electrical cords. Have you ever noticed that if the plastic on electrical cords wears out to expose the wires, it shorts out and doesn't work as well? That's what's happening to the nerves for people with MS. It's more damaging than that 80's movie with Steve Guttenberg (whatever happened to that guy?), though.
I have had weird vision problems, numbness and tingling in nearly my whole body (different areas at different times), sleeplessness, headaches, general fatigue, muscle weakness on one side of my body, balance problems, clumsiness and memory lapses.
I wonder now if I the adrenal fatigue I experienced back in 2009 and 2010 was actually the early stages of MS…or maybe a warning to me to slow down. Because I didn't get an MRI at that point, I may I never know.
The medication my neurologist has recommended I try is supposed to shrink lesions and stop them from progressively getting worse…but, they may always be there. I am learning to live with the idea that my body is incredibly resilient and it can heal itself. The first round of therapy happened on Valentine's Day...and it left me completely wasted for days. My walking is pretty wobbly, too.
Getting my first Tysabri treatment on Valentine's Day |
I keep up hope that I will find a new normal and eventually return to many of the things I love like running. In the meantime, I thank God for every day I'm alive.
My dearest Pam. What can I do for you and your family? Can I at least take you to lunch or dinner sometime soon?
ReplyDeleteYou're so sweet. I would love to see you, of course and you don't need to buy me anything, unless you wanna get me a Blendtec so I can make tons of super healthy smoothies! :) I think I'm going to wear out my Ninja in a few months.
ReplyDelete